WHO WE ARE
The people behind the mission
Trustees, medical advisors, and community leaders united by purpose.
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TRUSTEES
Our founding board
Our founding board
Soraya Willis
TRUSTEE · FOUNDING CHAIR & ACTING CHIEF EXECUTIVE
Founder of Beyond Disintegration.
Jenny (Jane) Woolner
TRUSTEE (TREASURER)
Trustee responsible for financial governance and accountability of the organisation.
Morolu Kocsis
TRUSTEE (LEGAL)
Trustee providing legal oversight and governance support to the organisation.
MEDICAL & SCIENTIFIC ADVISORY BOARD
Clinical & research advisors
Clinical & research advisors
Dr Christian Winiger
MEDICAL DIRECTOR & SAFEGUARDING LEAD
Medical Director overseeing clinical governance and safeguarding responsibilities.
Dr Kirsten Furley
CLINICAL ADVISOR (PAEDIATRICIAN RESEARCHER)
working in a novel clinic established to assess children experiencing early signs of developmental regression at Monash Children's Hospital, Melbourne (Australia). She is completing post doctoral research through Monash Health and Monash University to develop innovative ways to improve the earlier detection and diagnostic outcomes for children with developmental regression.
Dr Abha R Gupta
CLINICAL ADVISOR (NEUROSCIENCE)
Providing clinical and neuroscience research expertise to the organisation, based at the Yale Child Study Center and Yale School of Medicine, New Haven, USA.
Dr Alexander Westphal
CLINICAL ADVISOR (CHILD PSYCHIATRY)
Providing child psychiatry expertise and clinical guidance to the organisation, with long-standing involvement in CDD research and the wider CDD community.
Dr Kamlesh Sheth
SCIENTIFIC MENTOR & STRATEGIC ADVISOR
Providing scientific mentorship and strategic advisory support to the organisation's research direction.
Dr Wasan Bajallan
CLINICAL ADVISOR (PSYCHIATRY)
Clinical advisor with specialist psychiatric expertise supporting the organisation's clinical work.
COMMUNITY LEADERSHIP
Our community team
Our community team
Alexis Wilson
FOUNDING DIRECTOR OF COMMUNITY ADVOCACY & OPERATIONS
Leading community advocacy, supporting families and building the voice of the Beyond Disintegration community.
Qucie Whele
MARKETING LEAD, MEDIA AND PRESS RELATIONS
Leading marketing, media and press relations to raise awareness of childhood disintegrative disorder and grow the Beyond Disintegration community.
Professor Paul Willis
ETHNOGRAPHIC AND SOCIAL RESEARCH ADVISOR
Advising on ethnographic and social research to deepen understanding of the experiences of families affected by developmental regression.
Yvonne Ibison
COMMUNITY AND PARENT ADVOCACY TEAM
Supporting families and championing the voices of parents within the Beyond Disintegration community.
Rachel Parker
SOCIAL MEDIA TEAM AND SIBLING ADVOCACY
Managing Beyond Disintegration's social media presence and championing the voices of siblings within the Beyond Disintegration community.
Anna Graus
MULTILINGUAL OUTREACH CO-ORDINATOR
Co-ordinating multilingual outreach so that families can access support and information in their own language.
Munir Muhammad
TECHNICAL AND DIGITAL DEVELOPMENT
Supporting the technical and digital development of Beyond Disintegration's platforms and infrastructure.
Tabasam Nawaz
TECHNICAL AND DIGITAL DEVELOPMENT
Supporting the technical and digital development of Beyond Disintegration's platforms and infrastructure.
Name
TECHNICAL AND DIGITAL DEVELOPMENT
Supporting the technical and digital development of Beyond Disintegration's platforms and infrastructure.
Community & Volunteer Network
Beyond Disintegration is supported by a growing network of parent volunteers, families, and supporters who contribute their time, ideas, and lived experience to help shape and strengthen our work.
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